The National Institute for Health and Care Excellence (NICE) has issued preliminary guidance stating that three drugs used to treat cystic fibrosis (CF) should not be used within the NHS.

Kaftrio (ivacaftor/tezacaftor/elexacaftor), Orkambi (lumacaftor/ivacaftor), and Symkevi (ivacaftor/tezacaftor) are the three drugs in question, produced by Vertex Pharmaceuticals.

Jess and Will Meyrick have a 2-year-old daughter called Ottilie with the condition.