Crazy Daniel up all night and Sarah pays a visit!!!!
- 6 yıl önce
Sometimes Daniel stays up entire nights just laughing and being strange. It worries me because I suspect gelastic seizures. Also, Sarah came home for a quick couple of days and I was so happy to see her. Im worried about Daniel..and his weird behavior. \r
***************************************************************************\r
Please. Subscribe. Below is a general explanation of this channel. \r
\r
My middle son, Daniel John Hasselberger was born on November 22, 1997, with a rare brain deformity called Polymicrogyria. He has seizures, respiratory problems, can only eat by g tube, is in a wheelchair, can not speak, and has had countless surgeries and hospitalizations over his 16 years. We are a family of 5 from Sandy Hook, CT and this is our journey. Raising a severely medically fragile boy has been quite an adventure, and every day is full of new things that we dont expect. I am Julie, Daniels Mom. I left my full time career as an HR Director 11 years ago because Daniel needed care that only a Mother can give. The struggle, the sacrifices, the sibling love, and miracle after miracle after miracle. \r
Why did I create this channel? For support, to help other families dealing with the same diagnosis, to help me cope with depression and isolation, etc. Please leave comments and help us grow and develop this channel. Life is incredible, and I want to share our story. Julie Hasselberger \r
Ways to connect, join our journey, support Daniel and make new friends….\r
Subscribe to this You Tube Channel \r
\r
..\r
\r
twitter @jhasselberger \r
\r
Instagram jhasselberger \r
\r
facebook Julie Hasselberger\r
\r
facebook page for Daniel “Daniels journey with Polymicrogyria”\r
\r
email jhasselberger@snet.net \r
\r
\r
\r
Keywords: Polymicrogyria, cerebral palsy, disabled, wheelchair, family, mother, journey, children with disabilities, vlogging, Hasselberger, brave, courage, faith, therapy, handicapped people, families of disabled, kids with special needs, child with disabilities, special needs kids, raising a child with disabilities, my disabled child, having a disabled child, special need equipment, bilateral polymicrogyria, polymicrogyria symptoms, polymicrogyria life expectancy, causes of epilepsy, tube gastrostomy, gastrostomy feeding, sibling with disabilities, parents of disabled child, parenting disabled children, help for families with disabled children, assistance for families with disabled children, inspirational story about life, inspirational real life stories, neurology, stress, amazing mothers, amazing ,cytomegalovirus, inspirational story about a mother, a family journey, loving family, brain malformation, Sandy Hook, CT, story about a disabled boy, family with disabled boy, hard working dedicated Mom, laughter, channel about a disabled child, sick child, microcephaly, fibromyalgia, pain, rhumatology, neurologist appointment, chronic fatigue, exhaustion, financial stress, managing disability, boy with disabilities, special needs, child with cerebral palsy, mother with fibromyalgia, pressure\r
\r
-~-~~-~~~-~~-~-\r
Please watch: HANGING BEACHBALL \r
\r
-~-~~-~~~-~~-~-
***************************************************************************\r
Please. Subscribe. Below is a general explanation of this channel. \r
\r
My middle son, Daniel John Hasselberger was born on November 22, 1997, with a rare brain deformity called Polymicrogyria. He has seizures, respiratory problems, can only eat by g tube, is in a wheelchair, can not speak, and has had countless surgeries and hospitalizations over his 16 years. We are a family of 5 from Sandy Hook, CT and this is our journey. Raising a severely medically fragile boy has been quite an adventure, and every day is full of new things that we dont expect. I am Julie, Daniels Mom. I left my full time career as an HR Director 11 years ago because Daniel needed care that only a Mother can give. The struggle, the sacrifices, the sibling love, and miracle after miracle after miracle. \r
Why did I create this channel? For support, to help other families dealing with the same diagnosis, to help me cope with depression and isolation, etc. Please leave comments and help us grow and develop this channel. Life is incredible, and I want to share our story. Julie Hasselberger \r
Ways to connect, join our journey, support Daniel and make new friends….\r
Subscribe to this You Tube Channel \r
\r
..\r
\r
twitter @jhasselberger \r
\r
Instagram jhasselberger \r
\r
facebook Julie Hasselberger\r
\r
facebook page for Daniel “Daniels journey with Polymicrogyria”\r
\r
email jhasselberger@snet.net \r
\r
\r
\r
Keywords: Polymicrogyria, cerebral palsy, disabled, wheelchair, family, mother, journey, children with disabilities, vlogging, Hasselberger, brave, courage, faith, therapy, handicapped people, families of disabled, kids with special needs, child with disabilities, special needs kids, raising a child with disabilities, my disabled child, having a disabled child, special need equipment, bilateral polymicrogyria, polymicrogyria symptoms, polymicrogyria life expectancy, causes of epilepsy, tube gastrostomy, gastrostomy feeding, sibling with disabilities, parents of disabled child, parenting disabled children, help for families with disabled children, assistance for families with disabled children, inspirational story about life, inspirational real life stories, neurology, stress, amazing mothers, amazing ,cytomegalovirus, inspirational story about a mother, a family journey, loving family, brain malformation, Sandy Hook, CT, story about a disabled boy, family with disabled boy, hard working dedicated Mom, laughter, channel about a disabled child, sick child, microcephaly, fibromyalgia, pain, rhumatology, neurologist appointment, chronic fatigue, exhaustion, financial stress, managing disability, boy with disabilities, special needs, child with cerebral palsy, mother with fibromyalgia, pressure\r
\r
-~-~~-~~~-~~-~-\r
Please watch: HANGING BEACHBALL \r
\r
-~-~~-~~~-~~-~-